My name is Logan Madsen. I am a 36 year old self-taught-fine-artist from Salt Lake City, Utah with I AAS in Graphic Design/Multimedia. I live alone, with my dog Charlie. I have a rare condition called Miller Syndrome(less than 30 documented cases worldwide) which affects muscle and bone formation, causes hearing loss and a few organs. Additionally, I have a lung condition and Autism Spectrum Disorder(ASD). My older sister, Heather,suffers from the same disabilities. In 2010, we were the first family in the world to get our entire DNA genome sequenced. Scientists found that Miller Syndrome is a recessive gene. They also found Primary Cyliary Dyskinesia(PCD) –also a recessive gene- which is the cause of our lung disease, Bronchiectasis.
We all have skin.
When I see somebody who looks different, I want to inspect them as much as I can. Clearly, it’s not nice to stare, but WE ALL WANT TO. I wish I could touch them, talk with them, understand them, but it’s too risky. I might offend them or get stuck having to be overly charitable in my efforts to save face. What if they are clingy? I don’t know their mental capacity. How do I to relate to someone who looks so weird??? It’s kind of gross and alien-like. Some may say “This is too hard for me to deal with.” Others might cringe and pray to God that “weirdo” doesn’t look in their direction.